What did we do?
NIHR CLAHRC GM held a national end-of-life conference, at The University of Manchester. The main themes of the conference were research, audit and evaluation in relation to palliative care.  

Why was it important?

Compared to other specialties palliative and end-of-life care is under researched and audited. The aim of the conference was to provide a forum where people involved in end-of-life care had the opportunity to network, share ideas and discuss and present audit and research findings with colleagues. The main focus was putting local evidence into practice, improving care provision and moving priority setting forward.

How was it received?

The conference was very well attended with over 50 delegates from across a wide range of professions and organisations. Over half (n=52) of the delegates completed an evaluation form. Feedback regarding the content and delivery was extremely positive, as the quotes below illustrate:

• “ Event overall was interesting and enjoyable”
• “ Although my day to day is clinical. I have interest in research and quality improvement - this event meets my interests and also important in regards to appraisal and evaluation
  Most of the presenters were skilled in engaging the audience”
• “ Starting with Tony speaking from a carers perspective was great - it really focused us on why we do what we do
  Really liked the last session”
• " Very informative. Excellent networking opportunity, great to find out about research and initiatives going on regionally"

 

Downladable resources

 

• Presentations and abstracts

  What prevents advance care planning in haematology? (Alice Travers; Salford Royal NHS Foundation Trust)

  • Abstract
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  Bittersweet living life in the face of loss: parenteral nutrition in ovarian cancer patients in bowel obstruction (Anne Marie Sowerbutts; University of Manchester)

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  • Presentation

   

  How can carers be supported better at end-of-life? A mixed methods study to identify recommendations for change in organisational structures/processes (Gail Ewing; University of Cambridge)

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  • Presentation

   

  Feasibility of an online implementation toolkit for palliative care services seeking to implement a carer-centred process of assessment and support (Janet Diffin; Queen's University Belfast)

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  • Presentation

   

  The Impact of a Namaste Care Programme in care homes with residents with Advanced Dementia (Lynne Partington Sara Jones; End of Life Partnership)

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  Mobilising knowledge in palliative and end of life care services through Circles of Learning (Marsha Dawkins; Kings College London)

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  • Presentation 

   

  Priorities for Care of the Dying Person; Engage, Embed, Enshrine (Paul Spencer; Manchester Foundation Trust)

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  Do educational interventions by pharmacists help patients with cancer pain? – A systematic review and meta-analysis (Zoe Edwards; University of Bradford)

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  IdeNtification of Support and Information needs alonG the care PatHway for Patients with Non-Small Cell Lung Cancer (NSCLC) receiving Treatment with curative intent chemo-radiotherapy: Emerging findings from the INSIGHT study (Grant Punnett; The Christie)

  • Abstract
  • Presentation

 

Next Steps?

Continue to forge collaborative research and have a dedicated Palliative Care Research Discussion Group, and engage more people and organisations in end-of-life research.

 

More Information

For more information please contact Michael Spence (Programme Manager).